Since the creation of Nova's blog, I find that I say the same thing here and there. I'm thinking of keeping the Nova updates to his blog, but then I wouldn't say anything at all here.
I feel sort of bad for the folks clicking over from his blog, all they're getting is a rerun.
I'm just so frustrated by the lack of concrete answers. I don't even know how I feel right now, other than angry and afraid. I don't know how common these types of complications are in heart babies post-surgery. All I know is that none of the babies/children that have been in CVRU in the last 2 weeks have gone through this type of stuff. Hell, they're all either in their own rooms or gone home by now. We expected 3 - 6 weeks of recovery. We're on day 14: 2 weeks, and we're no where even close to thinking about our own room. Hell, we're no where close to even knowing how close we might be. And everything changes so quickly. God please let any future changes be for the better.
I just can't think farther (further? about anything other) than him right now. The rest is just small stuff.
Candy, who wasn't Nova's nurse tonight, shared [this] with me tonight. Appropriate, though I think I probably didn't appreciate it as much as I should have.