Well, so far this has been a hell of a week, and promises to continue to be full and busy. There have been doctor appointments every day this week. Monday was a well-check/weight check. The thrush isn't cleared up yet, but his weight gain and growth is in the 50-75th percentile. He was up to 9 pounds 9 ounces.
Tuesday was our bi-weekly visit to the cardiologist. They weighed him too - up to 9 pounds 13 ounces overnight...
They checked his Oxygen Saturation levels, which is mostly why we go. His numbers have been on a steady decline since we left the hospital, which means the collateral are shrinking. It's the thing we were hoping wouldn't happen, or that at least it wouldn't happen so soon. Dr Bensky was pretty concerned by the trend, and they scheduled his heart cath (originally scheduled for late February) for Friday morning, and want to go ahead with the surgery. We'll know the definite date on Friday afternoon, but most likely will be within the next week or so. It's a sudden change, and not great news. We really wanted to put this off until he was a couple months older. We're sort of in shock over it.
While we were at the cardiologist's office, my ob/gyn called and left a message on the voice mail for me to call back. Looks like surgeons are in a hurry to do surgery this month - my tubal ligation was scheduled for January 26th, but Dr. Sobel moved it up to tomorrow, which meant that today, there were a total of 4 appointments between 1pm and 3pm.
Tomorrow, I'll spend the day in outpatient surgery having my tubes tied. I have to be there by 8, and they figure I'll be on my way home around 2. Friday morning we have to be at CMC by 6am for Nova's heart cath. That'll be an all day affair, and possibly an overnight stay, which will eat up most of Saturday too most likely. Once this catheterization is done they could do the surgery at any time.
I kept saying how easy it was to pretend that we weren't facing the surgery - easy to just not think about it. All of a sudden, it's undeniable, and right around the bend, and I'm just not ready yet.
Erin, I don't know if there will ever be a moment in life where you'll feel "ready". I know that I'm just an outsider here and I feel like kicking and screaming and begging for just a little more time.
ReplyDeleteI place faith in the doctors to make the right decisions for Nova, and to do what is in his best interest. But MAN! All of a sudden the safety of March just got stripped away, and I have to tell you, even I feel shaken.
I love you E, I've said it before, I'll say it a million times more, anything you need-ANYTHING- don't hesitate to call me. Even if it's just someone to scream at and take some frustration out on. I'm good for that.
Thinking of you and sending all the good energy I can.
ReplyDeleteKick ass Erin, your own and get in gear. Try not to fear what you don't know and can only wonder about. Worrying doesn't help, it will just wear you down. If you need someone to show compassion and understanding, even though they aren't experiencing your situation, you can always count on me. I've been there for you for awhile. Please let me know if there's anything I can do.
ReplyDelete<--what E2 said
ReplyDeleteHey hon,
ReplyDeleteGood luck on all this - I know that, like Ang, said the safety and security of March has been stripped away, but at least you won't have the gradual build up of of anxiety that would start around Mid-February. It's small bonus, but it may end up being a wonderful asset.
Lots of love from over here.
*hug*
God! When it rains it pours with you, doesn't it? Good luck, sweets, we're rootin for you.
ReplyDeleteOh, Man, E. What a mess. I'm hoping everything works well in all things. I'm here even if I'm not.
ReplyDeleteMan, you guys all rock. Thanks so much for letting me know how many people care! I can't imagine going through all I am, without all of your encouragement and support!
ReplyDelete*hug* to yu all
ML~
~E