It's hard to keep you guys updated very well on Randy's situation, and still respect their privacy. I'm trying not to be too specific, or use anyone's name other than Randy's. But It's hard. We talked again on Thursday night, and she said she'd call if the results came in yesterday. She didn't call, so they didn't come in, but we'll call them later.
I haven't been to New York in a few years now. It just gets too expensive to fly and too difficult to drive with all these kids - so I've never even met Randy's wife, but we've talked on the phone and she's such a sweetheart. Scott met her for the first time earlier this year when he went up for his Dad's funeral, and really liked her a lot. Now, I mean, she's being so wonderful with Randy, so supportive and positive and doing everything for him that he needs. And she's handling it so well, I'm amazed. She won't let him give up, and when he found out that none of the other siblings matched on Wednesday, he took it really hard. But she just wouldn't let him give up. She's exactly what Randy needs.
You know, they dated as teenagers for a while and "re-met" a few years ago. She said she drug out the letters and poems (yes, she writes poetry too!) that she wrote back then and read them to him recently. Isn't that absolutely the sweetest thing ever? I think she just might be the biggest reason he makes it through this. I don't know how she does it. She was telling me about all the insurance beaurocracy and red tape, and the deductible and the percentages and the way the insurance company won't pay for the experimental drug that offers him the most hope right now. $400 a month just for that one drug, and the insurance doesn't pay for it. If Scott isn't a match he'll need time to find a match from the bone marrow bank - this drug can buy him as much as 4 months. Without it, he may very well not make it long enough to find a match at all.
Well, I'm going to go scrounging. I don't know what I have around here that anyone might want, but I'll find something, hopefully a lot of something, and it's going on ebay. All donations that I get from here out are going to them, and every other penny I can possibly spare from here to eternity too.