r blog

Rosie O has a blog. I love her, and her blog, and her poetry, and her photos...

You can ask Rosie questions, and she comes through and answers selected ones. She gets so many in a day she can't answer them all. I asked her a question today. I've asked it before. I asked for her support in the Heart Walk. Who knows if she has even read mine. Seriously, the volume is staggering.

at 12:09, I asked Rosie question #1304:

even if you don't donate, please post this, so others can? https://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=211173&supId=160575062

She's big on children's charities. But the AHA isn't really a children's charity now is it. I hope she posts it, or that I get some sort of response. I doubt I will.

Alexis' CHD Quilt Block

Last year after Nova died, someone told me about the CHD Awareness Quilt(s). These are quilts (40+) that are comprised of seperate blocks, each designed for a CHD child, living or passed. Of course as soon as I heard of it, I requested blocks for both Nova and Alexis. In October, I received a picture of Nova's block. As you can see (if you click) they customize each block for the child it's meant to honor. I requested stars for Nova's, for obvious reasons - and the block is just beautiful.

Today, I received Alexis' block. Again. it's customized just for her. Alexis was 12 days old when she died, and at her funeral, we placed 12 pink roses on her casket... 1 for each day she lived. So her block has pink roses on it.

Nova's block has been waiting for 8 months to be added to a quilt - waiting for Alexis' block to be finished so that they can be put into the same quilt. Now that hers is done, they can be incorporated into a quilt...

I can't wait until they are. The quilts are often displayed at CHD awarenes/fund raiser events around the country, and I'm hoping that we will, someday, be able to see our babies together.

Amazing!

Last year, after we lost Nova to a Congenital Heart Defect, when I started getting involved with the American Heart Association by joining the Heart Walk, I knew I had the freshness of Nova's death to move people. I never imagined so many people would be so moved, but I knew that I needed to make a difference in this world in his and Alexis' memory, and that his recent death was going to be a motivating factor, not just for us, but for everyone else as well. But I have to be honest here, I never believed that Team Nova would raise $5000+ dollars like we did!

So this year when we signed up again, a year out from Nova's death, nearly 6 since we lost Alexis... I set my goal high enough to intimidate myself, and convinced myself that the time span was going to hinder our fundraising efforts. I overwhelmed and discouraged myself. Bad Erin!

But in the last 2 or 3 days I have had so many people suddenly come to me with support and encouragment! I've (as you can see with the badge at the top of this post) been nominated for Best Charity Blog, and several of my Blogger friends have made posts and started raffles in Nova's memory that will benefit Team Nova's awareness and fundraising efforts. They've added links in their sidebars and posted about one another's support So I'm thinking it's time I get off my butt and post our donation page link - and let Nova's life continue to make a difference.

So here's that link https://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=211173&supId=160575062 and if you feel moved to support us in our fight against Congenital Heart Defects, please, donate there, or join the yarn raffle... and please vote for my blog, and do it in memory of my babies, Alexis and Nova.